Top Places For People With Epilepsy To Live

Epileptic Explorer Counts Down
The Top Places To Live If You Have Epilepsy

Disclaimer: I am no expert on which cities have the highest level of epilepsy resources per capita or which states the nation’s most qualified neurologists call home but as someone living with epilepsy I do find this list to be quiet helpful.

Number 2: Portland Maine

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Number 1: Wherever They Want!

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This past month I have been slowly moving into a new apartment, just about five blocks away from my current apartment in the city of Portland, Maine and it got me thinking about why I choose to live in Portland at all. Maybe you have heard of the city. It’s been on heck of a lot of top ten, twenty, thirty etc. lists lately and today its made its way onto mine.

Portland has made it onto this exclusive top 2 list not because it has some phenomenal amount of resources for people with epilepsy (it doesn’t) or because it has fantastic public transit for those of us who can’t drive (it doesn’t) but because to me it’s home. Although its number of neurologists is limited it’s restaurants are vast (and I love to eat) and what it lacks in epilepsy support groups it makes up for in the calm and therapeutic sounds of ocean waves (my favorite sound to relax to). Plus, Boston has plenty of resources and it’s just two hours away. The purpose of this post isn’t to persuade you to move to Portland however. That’s why the city didn’t take the number one spot. It’s to let you know that even with epilepsy you can live wherever you want!

Take a look at where you currently live. Is it a place that makes you happy? If not, think about what’s holding you back from changing your living situation. Is it in any way tied to your epilepsy? If so, remember this. Epilepsy can keep us from doing some things but it can’t keep us from living where we want. I’ll say it again. You’re not stuck. Make a list of the top five things you want and need from a living situation. If your current location doesn’t provide majority of those things, do some research and find a place that does, then move there, or maybe try some places out to see what fits. Don’t hold back.

If you love where you currently live. I would love to know about it! Please share your story with your fellow epilepsy warriors in the comments below.

Don’t let epilepsy hold you back from living the life you deserve.
-The Epileptic Explorer

 

 

8 thoughts on “Top Places For People With Epilepsy To Live

  1. I’d say look for a level 3 or level 4 clinic somewhere near you. It’s a 60 mile drive (or more) for me to a higher level clinic. When the neurology clinic in my city closed up shop I started calling the clinics in the metro. After calling 3 and having 3 disappointments I contacted an advocate for epilepsy and they suggested one facility I hadn’t even considered. Glad I was pointed in that direction!

    I also suggest to many to read up on their medications so if symptoms arise they know if it is of worry or not. I have had neurologists at several clinics over the last 35 plus years. Just because you hear one negative about a clinic doesn’t mean all doctors there are bad.

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    1. Thank you for that information Travis. Glad to hear you found the right direction for you when it comes to finding the right clinic and doctors. Your optimistic outlook about the clinic search, which can often be stressful is very refreshing and appreciated. Thank you for joining the conversation.

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  2. While I wish as a mom I could say my son could live anywhere he wanted, the lack of neurology in many states now is making this hard. My son lived in a city he loved but in 5 years all the neurologists left the city and now the closest neurologist that will deal with seizures is 415 miles each way! In 5 years no new neurologist will come. There is no flights and my son does not drive so after 18 months of trying to trade for rides and have us drive or family go out and drive, we decided that he has to relocate to be within an hour of a neurologist. Sadly when you look at the US today it eliminates many cities and states. I was even shocked that he could not get a primary care doctor without a neurologist first. He applied , yes applied where he lived for a new primary care doctor and none accepted him outright and 2 of the 42 he applied to said they would take him if he had a neurologist to care for the epilepsy. My son lived in a major city over 100k people so I asked other epilepsy families what they did and not one of them was working or leading a full life. I had a healthcare advocate as well as the team of neurologist at the Mayo Clinic that has helped my son try and find neurology care and there is just nothing. I also did not relaize with the severe lack of neurologists, neurologist also can say they will only deal with certain conditions. like neuromuscular, dementia, etc and so in my son;s area we did find a neurologist 320 miles away but they only saw dementia and related conditions, so 415 miles was really the closest to eplipsey. I wish again the sky is the limit but even with a great education, great health insurance, and good friends, you just can;t live in anywhere anymore because of the “neurology desert” in our country.

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    1. Hi Cammie. I am sorry to hear that this has been the case for your son. When I wrote this post I was feeling quite optimistic. The city I live in has very little resources for people with epilepsy, and a public transit system that leaves a lot to be desired. When I wrote this I felt as if things were changing for the better, not just here but in other areas. I’m sad to say that this hasn’t been the case. I now travel over a hundred miles to see a neurologist, and my romantic life has been strained as my partner just started an amazing job in an area with no public transit that is even further away from neurologists. I think its time for me to revisit this concept, and really seek out the best places, with the best resources. Thank you for your comment. I wish you and your son the best. I am always looking to share other’s stories of what they are accomplishing despite the hurdles epilepsy puts in our way. If your son would like to have his story told to help inspire others, please email me or have him email me at epilepticexplorer@gmail.com.

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