It’s hard to believe that Trevon Sundiata, the man you see at minute 3:15 of this video suffered a brain injury 24 years ago while on active duty which resulted in a battle with epilepsy, migraines, photosensitivity, vertigo, PTSD, anxiety and depression. It’s true though, Trevon, whose seizures started in 2018, doesn’t let them or the other effects of his injury keep him down. An athlete at heart, Trevon believes that movement provides a level of healing and he was committed to finding a way to keep the activity he was used to having in his life despite the obstacles the brain injury put in his way. Finding soon enough that he would be tacking much different obstacles when he committed to running in a Spartan race just a year after is epilepsy diagnosis.
It was when Trevon found himself at his lowest, in pain every day, averaging 4 seizures daily, depressed and just looking for answers that friends introduced him to Adaptive Training Foundation (ATF) to help turn his life around. The Adaptive Training Foundation is committed to helping people with physical disabilities transform their life through exercise and community, and that is exactly what they did for Trevon. His first time in the facility, a seizure came on, and everyone there took care of him. He knew right then that he was where he needed to be. He describes ATF as “A place where someone can find their fight again. A place where a person could stand out and fit in.”
Trevon completed his first ATF 9 week redefine program in the spring of 2019, which was followed up with a flight to Utah for a week-long intensive at the National Ability Center, where he did ropes obstacle courses, mountain biking, archery, white water rafting, and outdoor rock climbing. You read that right. Trevon has seizures and he does all of that thanks to ATF. This trip was his first time on a plane since being diagnosed, and he knew he would be safe because he was with his ATF crew He knew that they had his back no matter what happened. That right there shows the power of community in the healing process.
*Trevon takes a holistic approach to life combining diet, and meditation with the dedication and regiment that he practices through ATF to help manage his seizures. He is adamant about getting 8 hours of sleep a night, eats a Ketogenic focused diet incorporating supplements, exercise, breathing techniques, art, music, CBD and counseling and has found that the practice has helped reduce his seizures from 4 a day to 1 a month. He has even utilized a breathing exercise, taught to him by his ATF trainer to help take him out of a seizure before it escalates.
An inspiring individual, Trevon is committed to encouraging others through sharing his story. When asked what advice he has for others with epilepsy he responded, “Don’t Stop. Don’t stop seeking answers. Don’t stop seeking tools. Every person is different so we have to all seek the answers that are right for us.”
On July 4th, 2019 Trevon ran his first 5k. From there he continued training until he ran his first Spartan run in September of the same year, he ran 5 spartan races and 19 5k races proving once again that with the right training, attitude and resources that anything is possible.
*Please consult with your doctor about the best way to manage your seizure. Every body and brain is different and while one regiment may work for one individual it is best that you work with your doctor to find the treatment that works best for you.